Ingvild Elisabeth Winsnes

• Gallée, Jeanne; Cartwright, Jade; Henry, Maya L; Mooney, Aimee R; Stark, Brielle C & Volkmer, Anna [Show all 37 contributors for this article] (2026). The Progressive Aphasia Communication Toolkit (PACT): a strengths‐based approach to multidomain evaluation for intervention. Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring. 18(2). doi: 10.1002/dad2.70329. Full text in Research Archive Show summary

  INTRODUCTION Assessments of communication for people living with primary progressive aphasia (PwPPA) remain limited. This work describes the development of a strengths-based, ecologically valid instrument – the Progressive Aphasia Communication Toolkit (PACT). METHODS This work consisted of five experiments: two to develop (Experiments 1 and 2) and three to pilot (Experiments 3 to 5) a novel instrument for PPA. Ninety-five individuals worldwide contributed to this work: 80 researchers and clinicians, nine PwPPA, and six care partners. RESULTS Experiments 1 and 2 yielded a four-scale instrument comprising quantitative and qualitative feedback. Experiments 3 to 5 resulted in structural refinement and digitization of the tool, revealed strong PwPPA and care partner acceptance of the PACT, and demonstrated high inter-rater agreement for general observability (91%) and perceived communication strength (85%). DISCUSSION Current findings indicate that the PACT provides a holistic profile of communication strengths for PwPPA and can guide clinicians in developing functional therapeutic targets.

• Winsnes, Ingvild Elisabeth; Halvorsen, Mia Bjerkeli; Krogh, Elise & Volkmer, Anna (2026). Addressing Future Changes in Communication Using Hypothetical Scenarios With People With Primary Progressive Aphasia and Care Partners: A Conversation Analytic Study. International journal of language and communication disorders. ISSN 1368-2822. 61(3). doi: 10.1111/1460-6984.70235. Full text in Research Archive Show summary

  Background People with primary progressive aphasia (PPA) will experience a decline in language and cognitive function, and behavioural changes are not uncommon. Decline in everyday skills has been reported and becomes more pronounced over time. Previous research has shown that people with PPA and their care partners (CPs) want to address future changes. Addressing future changes and future planning is highlighted in guidelines, such as the National Institute for Health and Care Excellence's (NICE) guidelines on Decision‐making and mental capacity. The Better Conversations with PPA is a manualised program, where planning for future changes is addressed. Aims This study aimed to explore how the topic of planning for the future in Better Conversations with PPA is undertaken in conversations during the treatment sessions. Methods Conversation analysis (CA) is highlighted as the “gold standard” for analysing recorded healthcare communication. Using applied CA, a method to systematically study social interaction, we analysed video recordings from four dyads, comprising a person with PPA and a care partner, participating in the Better Conversations with PPA program. The sessions are led by a speech and language therapist. Outcome and results Our analysis shows that the structure of the conversations about the future is closely aligned with the structure of the Better Conversations with PPA program session plan. The speech and language therapist creates several opportunities for the dyads to engage in conversations about the future, using hypothetical questions and scenarios, creating a conversation environment where future changes can be addressed without the dyads having to relate this to themselves. Thereby orienting to the delicacy of the topic. Conclusion The Better Conversations with PPA program provides a promising framework for addressing future changes. The use of hypotheticals seems to be a useful strategy to promote sensitive conversations about future changes. WHAT THIS PAPER ADDS What is already known on this subject Primary progressive aphasia is a degenerative disease. Addressing future changes and future planning is highlighted in guidelines, such as the National Institute for Health and Care Excellence's guidelines on Decision‐making and mental capacity. The Better Conversations with Primary Progressive Aphasia is a manualised program, where planning for future changes is addressed. However, less is known about how the topic is treated by people with primary progressive aphasia, care partners, and speech and language therapists. What this study adds to existing knowledge Using conversation analysis to explore the topic of future planning in the Better Conversations with Primary Progressive Aphasia program, we found that the structure of these conversations is closely aligned with the structure of the program. Hypothetical questions and scenarios seem to be particularly powerful in addressing future changes and planning for these. What are the potential or actual clinical implications of this work? The Better Conversations with Primary Progressive Aphasia might be used as a framework to address future planning. Hypotheticals seem to be a useful strategy.

• Volkmer, A; Alves, EV; Bar-Zeev, H; Battista, P; Brotherhood, E. V. & Cadorio, IR [Show all 36 contributors for this article] (2026). An international core outcome set for primary progressive Aphasia (COS-PPA): commonalities in what people want to change about their lives with PPA across seventeen countries. Aphasiology. ISSN 0268-7038. p. 25–25. doi: 10.1080/02687038.2026.2620491. Full text in Research Archive Show summary

  Introduction Person-centred care has been recommended as best practice speech and language therapy for people with primary progressive aphasia. However there has been little research exploring what people with primary progressive aphasia and their family care partners want to change about living with the disease. The research undertaken to date has been skewed toward English-speaking, Western countries, meaning there is little understanding about cross-cultural needs. Methods Speech and language therapy/pathology collaborators across 17 countries recruited participants with primary progressive aphasia and their family care partners to participate in separate consensus groups. The Nominal Group Technique was used to ask participants what they would like to change about the way primary progressive aphasia affects communication and their lives. Two researchers coded the top three constructs identified by each group of participants in each country using the six Hofstede cultural dimensions; Power Distance, Uncertainty Avoidance, Individualism/Collectivism, Motivation Towards Achievement/Success and Long-Term Orientation. Results 89 people with PPA and 101 family care partners across 17 countries identified 102 constructs. All constructs were coded as aligned with one of the six Hofstede cultural dimensions. Of these, 36 aligned with the dimension of uncertainty avoidance, whilst 26 aligned with the dimension of a collectivistic culture. Discussion Across countries, people with PPA and their family care partners identified a desire for more certainty around their future lives as well as wanting more collaboration from within their social networks and communities to help them manage how PPA affects their lives. This demonstrates an urgent need to improve our understanding of the progression of primary progressive aphasia and educate the public.

• Winsnes, Ingvild Elisabeth; Norvik, Monica I. & Volkmer, Anna (2025). Adaptation of Better Conversations with Primary Progressive Aphasia to Norwegian. Brain Sciences. 15(9). doi: 10.3390/brainsci15090994. Full text in Research Archive Show summary

  Background/Objectives: People with primary progressive aphasia (PPA) and their communication partners report that having conversations becomes more difficult over time. They want speech and language therapy to help them have better conversations. Communication partner training has shown promise as an approach for people with PPA and their communication partners. However, there are currently no communication partner training programs available in Norwegian for people with PPA. The Better Conversations with Primary Progressive Aphasia (BCPPA) is a communication partner training program developed in the UK. In this study, we aimed to culturally adapt the BCPPA to meet the needs of Norwegian people with PPA. Methods: Guided by adaptation elements identified in a systematic review of frameworks for cultural adaptation, we translated the BCPPA into Norwegian before piloting it with four participant dyads, comprising people with PPA and their communication partners. The translated BCPPA was compared to the original BCPPA to identify adherence with core intervention components. Semi-structured interviews were used to explore the acceptability of the intervention to participant dyads. Outcome data, including Goal Attainment Scaling, coding of conversation behaviours from video samples, the Aphasia Impact Questionnaire, and the Communicative Effectiveness Index, were recorded pre-, post-, and three months after intervention delivery to explore outcomes for Norwegian participant dyads. We used the Framework for Reporting Adaptations and Modifications-Enhanced to document the modifications. Results: The results indicate high adherence to the core components in the original BCPPA. The pilot demonstrated that the participant dyads found the BCPPA acceptable, but they made some additional suggestions to complete the cultural adaptation further. Despite the progressive nature of PPA, the participant dyads achieved their goals on the Goal Attainment Scaling, and group analysis demonstrated maintenance on the Aphasia Impact Questionnaire and the Communicative Effectiveness Index over the three time points. Conclusions: This study demonstrates that the Norwegian version of the BCPPA was acceptable to the participants with PPA and their communication partner in this study. As the first communication partner training program for people with PPA and their communication partners in Norwegian, the BCPPA has the potential to be a valuable treatment tool to support people affected by PPA to have better conversations.

• Winsnes, Ingvild Elisabeth; Volkmer, Anna & Norvik, Monica I. (2025). Multilevel discourse treatment for primary progressive aphasia: a single-case multiple baseline study. Aphasiology. ISSN 0268-7038. doi: 10.1080/02687038.2025.2555862. Full text in Research Archive Show summary

  Background: Primary progressive aphasia (PPA) affects the production of discourse. Despite this, only a few studies have explored discourse treatments for people with PPA. These studies, all from countries with native English-speaking populations, have yielded positive results. However, there is a need for more research on discourse treatment from non-native English-speaking populations. To address this, we conducted the first discourse treatment study in Norway. Aim: We aimed to explore the feasibility of adapting a multilevel discourse treatment from English to Norwegian, and the acceptability and early effectiveness of this intervention in a participant with PPA, addressing the treatment’s impact on lexical retrieval informativeness, efficiency, macrostructure, and social and functional communication. Methods and Procedures: In this single-case study, we applied a multiple baseline design with repeated measures. One person with mixed PPA with Alzheimer’s disease pathology was enrolled in the study. The participant received 20 sessions of the principle-based intervention, the Narrative and Discourse Intervention in Aphasia (NADIIA), delivered over six weeks. Discourse production was measured with the Curtin University Discourse Protocol, and social and functional communication with the Aphasia Impact Questionnaire- 21 (AIQ-21) and the Communicative Effectiveness Index (CETI). We applied visual inspection of the data, and the statistical measures, the Non-overlap of All Pairs (NAP) and the within-case standardised mean difference (WC-SMD). Outcome and Results: The participant showed improvement in lexical retrieval in discourse production, the macrostructure of the discourse and informativeness and efficiency, with the NAP ranging from weak to medium and the WC-SMD ranging from small to medium. The results were maintained at three-month follow-up. The participant improved on the AIQ-21, with scores improving from 24 points at the pretest to 12 points at three-month follow- up. The CETI scores were almost at ceiling ( > 90 points) at pretesting, and this was maintained at post-testing and follow-up. Conclusion: It is possible to deliver the NADIIA in Norwegian without any major adaptations. The treatment had a positive impact on discourse production and social and functional communication, and the results were maintained at the three-month follow-up. This is a promising intervention that Norwegian speech and language therapists can add to their toolkit when working with people with PPA.

• Grasso, Stephanie M.; Gallée, Jeanne; Cartwright, Jade; Jokel, Regina; Lavoie, Monica & McGowan, Ellen [Show all 16 contributors for this article] (2025). International Practices of Speech-Language Pathologists Working with Bilingual Speakers with Primary Progressive Aphasia. Alzheimer's & Dementia. ISSN 1552-5260. doi: 10.1002/alz.093450. Full text in Research Archive Show summary

  Background - Although primary progressive aphasia (PPA) is considered a rarer form of dementia, individuals living with PPA are increasingly identified by healthcare professionals. Research investigating speech-language assessment and intervention in PPA has been conducted primarily in monolingual speakers and little is known about clinical decision-making of speech-language pathologists (SLPs) working with bilinguals with PPA.<p> <p>Methods - A comprehensive survey containing questions regarding clinician confidence, prioritization, and ratings of basic competency for Volkmer, Cartwright, Ruggero et al.’s (2023) best practice principles was constructed with questions that also queried practices pertaining to working with bilingual populations. Data was collected anonymously, via the Qualtrics survey platform and the survey was disseminated via social media and through social networks of study team members.<p> <p>Results - A total of 185 participants responded with representation from 27 countries. In total, bilingual participants spoke a total of 39 different languages. The average number of languages spoken by respondents was 1.86 (SD = 1.08). Twenty-three percent of respondents reported that they provided clinical services bilingually and 28% identified as bicultural. Respondents indicated that coursework in their training to become SLPs related to bilingual neurogenic communication disorders was covered for less than two hours (39%), less than five hours (33%), or more than five hours (28%). The majority of respondents indicated that they sometimes or typically worked with an interpreter or translator for conducting bilingual assessments (43%) or performed them independently (18%). When asked which language respondents typically assess participants in, 5% indicated the maternal language, 39% indicated the dominant/most functional language(s), and 54% indicated the language(s) the clinician felt comfortable speaking.<p> <p>Conclusion - This study reports, for the first time, the practices of speech-language pathologists working with bilingual speakers with PPA. Results indicate that SLPs are likely to receive some exposure to bilingual adult neurogenic communication disorders in their training. SLPs are more likely to assess bilingual individuals with PPA in the languages clinicians speak, or in the participant’s most functional/dominant language(s). Additional international forums are needed to extend core principles and philosophies of SLP practices, particularly when individuals living with PPA speak more than one language.

• Galée, Jeanne; Cartwright, Jade; Graso, Stephanie; Jokel, Regina; Lavoie, Monica & McGowan, Ellen [Show all 16 contributors for this article] (2024). Global perspectives on the management of primary progressive aphasia. Scientific Reports. 14(1). doi: 10.1038/s41598-024-70156-5. Full text in Research Archive Show summary

  Speech-language therapists/pathologists (SLT/Ps) are key professionals in the management and treatment of primary progressive aphasia (PPA), however, there are gaps in education and training within the discipline, with implications for skills, confidence, and clinical decision-making. This survey aimed to explore the areas of need amongst SLT/Ps working with people living with PPA (PwPPA) internationally to upskill the current and future workforce working with progressive communication disorders. One hundred eighty-six SLT/Ps from 27 countries who work with PwPPA participated in an anonymous online survey about their educational and clinical experiences, clinical decision-making, and self-reported areas of need when working with this population. Best practice principles for SLT/Ps working with PwPPA were used to frame the latter two sections of this survey. Only 40.7% of respondents indicated that their university education prepared them for their current work with PwPPA. Competency areas of “knowing people deeply,” “practical issues,” “connectedness,” and “preventing disasters” were identified as the basic areas of priority and need. Respondents identified instructional online courses (92.5%), sample tools and activities for interventions (64.8%), and concrete training on providing care for advanced stages and end of life (58.3%) as central areas of need in their current work. This is the first international survey to comprehensively explore the perspectives of SLT/Ps working with PwPPA. Based on survey outcomes, there is a pressing need to enhance current educational and ongoing training opportunities to better promote the well-being of PwPPA and their families, and to ensure appropriate preparation of the current and future SLT/P workforce.

• Volkmer, Anna; Alves, Emily Viega; Bar-Zeev, Hagit; Barbieri, Elena; Battista, Petronilla & Beales, Ashleigh [Show all 66 contributors for this article] (2024). An international core outcome set for primary progressive aphasia (COS-PPA): Consensus-based recommendations for communication interventions across research and clinical settings. Alzheimer's & Dementia. ISSN 1552-5260. doi: 10.1002/alz.14362. Full text in Research Archive Show summary

  INTRODUCTION - Interventions to treat speech-language difficulties in primary progressive aphasia (PPA) often use word accuracy as a highly comparable outcome. However, there are more constructs of importance to people with PPA that have received less attention.<p> <p>METHODS - Following Core Outcome Set Standards for Development Recommendations (COSSTAD), this study comprised: Stage 1 – systematic review to identify measures; Stage 2 – consensus groups to identify important outcome constructs for people with PPA (n = 82) and care partners (n = 91); Stage 3 – e-Delphi consensus with 57 researchers.<p> <p>RESULTS - The systematic review identified 84 Outcome Measurement Instruments. Core outcome constructs identified included: (1) Participate in conversations with family and friends, (2) get words out, (3) be more fluent, (4) convey a message by any means, and (5) understand what others are saying. Researchers were unable to reach a consensus on measurement instruments.<p> <p>DISCUSSION - Further work is required to develop appropriate measurement instruments that address all core outcome constructs important to key stakeholders.<p> <p><uli>Highlights: <li>We introduce new symptom-led perspectives on primary progressive aphasia (PPA).</li> <li>The focus is on non-fluent/agrammatic (nfvPPA) and semantic (svPPA) variants.</li> <li>Foregrounding of early and non-verbal features of PPA and clinical trajectories is featured.</li> <li>We introduce a symptom-led staging scheme for PPA.</li> <li>We propose a prototype for a functional impairment scale, the PPA Progression Planning Aid.</li></uli>

• Øra, Hege Prag; Kirmess, Melanie; Brady, Marian C.; Winsnes, Ingvild Elisabeth; Hansen, Silje Merethe & Becker, Frank (2018). Telerehabilitation for aphasia - Protocol of a pragmatic, exploratory, pilot randomized controlled trial. Trials. 19(208). doi: 10.1186/s13063-018-2588-5. Full text in Research Archive Show summary

  Background The Cochrane review on the effectiveness of speech and language therapy for aphasia following stroke suggests intensity of therapy is a key predictor for outcome. Current aphasia services cannot provide intervention at the intensity observed within trial contexts because of resource limitations. Telerehabilitation could widen access to speech-language pathologists (SLPs) in geographically remote contexts and reduce the time spent on travel by the therapist and patient. The current academic literature within this field is in its infancy, with few trials of speech and language therapy (SLT) delivered by videoconference. Our pilot randomized controlled trial (RCT) will explore feasibility aspects and effectiveness of telerehabilitation for aphasia in addition to standard SLT. Method/design Our study is a pragmatic, exploratory, pilot randomized controlled trial, where participants will be randomized to a telerehabilitation group or a control group. Both groups receive standard SLT (usual care) but the telerehabilitation group receives an additional 5 h of telerehabilitation per week over 4 weeks through videoconference. This additional telerehabilitation focuses on spoken language with an emphasis on word naming. We aim to include 40 patients in each group, with inclusion criteria being aphasia any time post stroke. Participants will be assessed blindly at pre-randomization (baseline), and 4 weeks and 4 months after randomization. The primary endpoint is naming ability 3 months after the completed intervention, measured by the Norwegian Basic Aphasia Assessment (NGA) naming subtest. Secondary endpoints include other subtests of the NGA, the VAST (Verb and Sentence Test) subtest sentence production, Communicative Effectiveness Index (CETI) and the Stroke and Aphasia Quality of Life scale (SAQOL-39). Experiences of patients and SLPs with telerehabilitation are assessed using questionnaires and semi-structured interviews. Statistical between group comparisons will be in line with an intention-to-treat analysis. Discussion This pilot RCT of intensive language training by videoconference will contribute new scientific evidence to the field of aphasia telerehabilitation. Here, we describe our trial which will explore the feasibility of telerehabilitation for aphasia as an intervention, our choice of primary and secondary outcome measures and proposed analyses. Our trial will provide information for the development and delivery of future definitive RCTs. Trial registration ClinicalTrials.gov, ID: NCT02768922 . Registered on 11 May 2016. Last updated on 17 November 2017.

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• Norvik, Monica I.; Bekkhus-Wetterberg, Peter; Døli, Hedda; Erikstad, Nina Helen; Ribu, Ingeborg Sophie & Winsnes, Ingvild Elisabeth (2025). Adapting the Mini-Linguistic State Examination (MLSE) to Norwegian and Co-Developing the 'Living with PPA' Questionnaire. Full text in Research Archive
• Ribu, Ingeborg Sophie; Allegretta, Silvia; Norvik, Monica I.; Wetterberg, Peter; Erikstad, Nina Helen & Døli, Hedda [Show all 7 contributors for this article] (2025). Adapting the Mini-Linguistic State Examination (MLSE) to Norwegian. Full text in Research Archive Show summary

  Despite the growing demand for language-specific tools to assess and monitor language impairments and outcomes in persons with Primary Progressive Aphasia (PPA), there are currently no tools specifically for PPA in Norwegian. People with PPA in Norway are often assessed with assessment tools developed for English-speaking populations that are directly translated to Norwegian, which limits their applicability in non-English-speaking contexts, or with assessment tools for post-stroke aphasia. This study outlines the adaptation of the Mini-Linguistic State Examination (MLSE; Patel et al., 2022), a language screening battery with good validity and specificity for people with PPA, and efforts to establish norms for this test. The MLSE was adapted from English to Norwegian, incorporating linguistic and cultural features, while keeping fidelity to the original version. Linguistic variables, including frequency, word, and syllable structure, were considered. New illustrations were commissioned, and name agreement ratings were obtained from 50 people. The test was piloted on 15 adults without PPA (aged 50 years and older), and the final version is currently being normed on individuals with and without PPA. So far, three people with PPA (2 females) and 25 without PPA (18 females) haven been included. Norming data are still being collected, but preliminary explorations indicate that participants with PPA score as expected based on their diagnosed PPA subtype. This study marks the first development of tools for assessing language in Norwegian-speaking individuals with PPA. Preliminary findings from the norming process will provide insights into the reliability and diagnostic utility of the tools.

• Ribu, Ingeborg Sophie; Bekkhus-Wetterberg, Peter; Erikstad, Nina Helen; Døli, Hedda Ruth; Winsnes, Ingvild Elisabeth & Norvik, Monica Irene (2025). Adaptation of the Mini-linguistic State Examination (MLSE) to Norwegian and the development of a “Living with PPA” questionnaire through co-research. Full text in Research Archive
• Ribu, Ingeborg Sophie; Norvik, Monica Irene; Bekkhus-Wetterberg, Peter; Døhli, Hedda; Erikstad, Nina Helen & Høeg, Nina [Show all 7 contributors for this article] (2025). Living With Primary Progressive Aphasia - A Co-designed Questionnaire. Full text in Research Archive
• Winsnes, Ingvild Elisabeth (2024). Samtaletrening for primær progressiv afasi - erfaringer og resultater fra en norsk studie om Better Conversation with Primary Progressive Aphasia (BCPPA). Full text in Research Archive
• Winsnes, Ingvild Elisabeth (2024). Samtaletrening for personer med kommunikasjonsvansker. Full text in Research Archive
• Winsnes, Ingvild Elisabeth (2024). Primær progressiv afasi og samtale. Full text in Research Archive
• Winsnes, Ingvild Elisabeth; Volkmer, Anna & Norvik, Monica I. (2024). Primary progressive aphasia and conversation – results from a single case study. Full text in Research Archive
• Winsnes, Ingvild Elisabeth; Norvik, Monica I. & Volkmer, Anna (2024). Better Conversation with Primary Progressive Aphasia – adaptation to Norwegian. Full text in Research Archive
• Ribu, Ingeborg Sophie; Bekkhus-Wetterberg, Peter; Døli, Hedda Ruth; Erikstad, Nina Helen; Norvik, Monica Irene & Winsnes, Ingvild Elisabeth (2024). Assessment of cognition and language in neuro-degenerative language impairments in the Nordic countries. Full text in Research Archive
• Winsnes, Ingvild Elisabeth (2024). Når ordene forsvinner. Dagsavisen. ISSN 1503-2892. Full text in Research Archive
• Winsnes, Ingvild Elisabeth; Norvik, Monica I. & Volkmer, Anna (2024). Communication partner training for primary progressive aphasia with a multilingual couple. Full text in Research Archive
• Winsnes, Ingvild Elisabeth (2024). Ordsøk ved Primær progressiv afasi. Full text in Research Archive
• Winsnes, Ingvild Elisabeth; Døhl, Anita & Døli, Hedda Ruth (2023). Combined treatment for aphasia and AOS - a case presentation. Full text in Research Archive
• Norvik, Monica I.; Winsnes, Ingvild Elisabeth & Simonsen, Hanne Gram (2023). The Aphasia Impact Questionnaire: An assessment tool of emotional well-being in aphasia. Full text in Research Archive Show summary

  There has been a lack in aphasia assessment of outcome measures on how persons with aphasia experience life with aphasia. The new Aphasia Impact Questionnaire (AIQ) is a patient reported outcome measure, and a part of the Comprehensive Aphasia Test (CAT). The CAT test is currently being adapted into more than 20 languages, paving the way for cross-linguistic research, as well as assessment of multilingual persons with aphasia. The AIQ is constructed to explore and evaluate the consequences of living with aphasia, and assesses communication, participation, and emotional well-being through a picture-based scale. The Norwegian version was published in 2021.

• Winsnes, Ingvild Elisabeth (2023). Primær progressiv afasi og samtale - en intervensjonsstudie. Full text in Research Archive
• Winsnes, Ingvild Elisabeth (2023). Primary Progressiv Aphasia and Conversation - an Intervention Study. Full text in Research Archive
• Winsnes, Ingvild Elisabeth (2023). Temamøte om afasi. Full text in Research Archive
• Høeg, Nina; Norvik, Monica I.; Jensen, Bård Uri; Haaland-Johansen, Line; Winsnes, Ingvild Elisabeth & Lind, Marianne (2023). Linguistic variables in picture and cartoon descriptions by neurologically healthy Norwegian adults. Full text in Research Archive
• Norvik, Monica I. & Winsnes, Ingvild Elisabeth (2022). Om kommunikasjon i nære relasjoner når den ene har afasi. Full text in Research Archive
• Bekkhus-Wetterberg, Peter; Norvik, Monica I. & Winsnes, Ingvild Elisabeth (2022). Primær progressiv afasi (PPA). Full text in Research Archive
• Winsnes, Ingvild Elisabeth & Haaland-Johansen, Line (2022). Afasi i hverdagen. Full text in Research Archive
• Wetterberg, Peter; Brækhus, Anne; Müller, Ebba Gløersen; Norvik, Monica Irene; Winsnes, Ingvild Elisabeth & Wyller, Torgeir Bruun (2022). Primær progressiv afasi. Tidsskrift for Den norske legeforening (Tidsskriftet). ISSN 0029-2001. 142(17), p. 1477–1480. doi: 10.4045/tidsskr.22.0100. Full text in Research Archive Show summary

  I sjeldne tilfeller begynner degenerativ demenssykdom med isolerte vansker med språket, uten andre kognitive symptomer. Ofte kalles dette litt upresist for «ordleting». Det finnes flere varianter, forårsaket av ulike underliggende nevropatologiske forandringer. En sjelden gang er det problemer med talen snarere enn språkvansker som dominerer. Pasientene kan ha utelukkende språk- eller talesymptomer i mange år, men alle vil over tid utvikle en global demenssykdom. Denne kliniske oversikten beskriver primær progressiv afasi, som er en fellesbetegnelse for demenssykdommer som begynner med språkvansker.

• Norvik, Monica I. & Winsnes, Ingvild Elisabeth (2021). A Narrative Approach to Working with Primary Progressive Aphasia: A case study. Full text in Research Archive
• Norvik, Monica I.; Winsnes, Ingvild Elisabeth & Bekkhus-Wetterberg, Peter (2021). Primær progressiv afasi – relevans for logopeder. Full text in Research Archive
• Norvik, Monica I.; Winsnes, Ingvild Elisabeth; Bekkhus-Wetterberg, Peter & Brækhus, Anne (2021). Hva er primær progressiv afasi (PPA) – og hva har det å si for oss logopeder? Norsk tidsskrift for logopedi. ISSN 0332-7256. 67(2), p. 18–25. Full text in Research Archive
• Norvik, Monica I. & Winsnes, Ingvild Elisabeth (2020). AIQ: Nytt instrument for å utforske virkningen av å leve med afasi. Full text in Research Archive
• Haaland-Johansen, Line; Winsnes, Ingvild Elisabeth & Dahl, Hege Anita (2020). AAC and aphasia – Do we miscommunicate? An overview of reviews. Full text in Research Archive Show summary

  Background: Aphasia is an acquired language disorder causing communication problems. Strategies to facilitate communication is of importance. People from different professions are involved in aphasia rehabilitation in different ways and stages. This calls for inter-professional communication. The present paper focuses on views and terminology on AAC in aphasia. Aims: “If you, as a lay person or as a professional, perhaps with limited knowledge about aphasia, consult published research to learn more about AAC for people with aphasia, what might you find?” This question guides the research project. The aim of this paper is an overview of reviews on AAC and aphasia, to explore how augmentative and alternative communication – in relation to people with aphasia – is defined, framed and presented in published research. Method and Results: The project method is twofold. Pilot phase: An initial quantitative analysis of papers on AAC and aphasia published in two strategically chosen journals. Project phase: An overview of reviews (Hunt et al., 2018), based on a systematic search in ten databases, aiming at qualitative analysis and textual narrative synthesis. The quantitative analysis is an exploratory tool, aiming at challenging our preconceptions about the chosen research theme/question. The qualitative analysis is performed on the included reviews, focussing on how AAC for people with aphasia is discussed, framed and presented in published papers, and if and how AAC is defined. In the quantitative search, two strategically chosen journals (AAC (digitally available for 1985-2019) and Aphasiology (digitally available for 1987-2019)) were searched. This initial search seemed to justify our research question, indicating that the term AAC seems to be used less frequently and in a slightly different way in aphasia research than in research in other fields and/or in research on other populations. Kent-Walsh et al. (2015:11f) reported similar findings. June to September 2019, ten different databases covering a variety of professional fields were searched, using the search words ((aphasi* OR dysphasi*) AND (AAC OR "augmentative and alternative" OR "alternative and augmentative" OR "augmentative or alternative" OR "alternative or augmentative")), adapted to the search syntax of each base. We searched for these terms in the abstract, title, topic and/or keyword in the different databases, tailored to the inherent possibilities and limitations in each base. We only included papers identified as reviews, by the authors (in title, abstract or keywords), by the journal or in the database, and accepted any type of review. 115 candidate papers were identified. 21 review papers were included for qualitative analysis, the final result being 24 papers, as three additional papers were identified through citation search. All 24 review papers were included for analysis, true to the project’s aim and research question, but they were also appraised for quality, revealing substantial variation. A log shows the exclusion/inclusion process, as well as the search process. Discussion and Conclusions: Stories told and concepts and terminology employed, show variations and contradictions within research concerning AAC and aphasia, potentially causing a risk of “inter-professional miscommunicaton”, in research or – perhaps more grave – in the clinic. References Hunt, H., Pollock, A., Campbell, P., Estcourt, L. & Brunton, G. (2018). An introduction to overviews of reviews: planning a relevant research question and objective for an overview. Systematic Reviews, 7(39), 1-9. Kent-Walsh, J., Murza, K. A., Malani, M. D. & Binger, C. (2015). Effects of Communication Partner Instruction on the Communication of Individuals using AAC: A Meta-Analysis. Augmentative and Alternative Communication, early online, 1-4.

• Winsnes, Ingvild Elisabeth; Øra, Hege Prag; Kirmess, Melanie & Becker, Frank (2017). Aphasia telerehabilitation - A digital enterprise (experience from the SLT intervention). Full text in Research Archive
• Øra, Hege Prag; Kirmess, Melanie; Bergersen, Hilde; Winsnes, Ingvild Elisabeth; Erlenkamp, Sonja & Myklebost, Marthe Brurok [Show all 7 contributors for this article] (2017). Evidence-based aphasia rehabilitation guidelines - Multidisciplinary implementation through an E-learning program. Full text in Research Archive
• Øra, Hege Prag; Kirmess, Melanie; Brady, Marian C.; Winsnes, Ingvild Elisabeth & Becker, Frank (2016). Aphasia telerehabilitation early post stroke. Full text in Research Archive
• Winsnes, Ingvild Elisabeth; Etelämäki, Marja; Norvik, Monica I. & Volkmer, Anna (2026). Primary progressive aphasia and conversations. Speech and language therapy in a Norwegian context. Universitetet i Oslo. Full text in Research Archive Show summary

  The overarching aim of this thesis was to understand how we can improve everyday conversations for people with primary progressive aphasia (PPA) in Norway. Through four studies, I explored speech and language therapy for people with PPA in Norway, and everyday conversations between a person with PPA and their interlocutor. In the first study, I analysed video recordings of everyday conversations between a person with PPA and their interlocutor using conversation analysis. In the second study, I used a single-case multiple baseline design to explore the feasibility and early effectiveness of a multilevel discourse treatment, delivered in Norwegian to a person with PPA. The third study explored the cultural adaptation of a communication partner training program, from English to Norwegian, and included four people with PPA and their close others. Finally, data from the third study were used in the fourth study. I analysed video recordings from the communication partner training program using applied conversation analysis to explore how the topic of future changes is addressed. In the first study, I identified a practice which contributed to maintaining progressivity and intersubjectivity in conversations between a person with PPA and their interlocutor. Further, in study II, I found that it was feasible to deliver a multilevel discourse treatment in Norwegian and that the person with PPA showed some improvement, which was maintained at three-month follow-up. In the third study, I found a high fidelity to the core components of the communication partner training program. The program was acceptable to the participants, and they achieved their goals. Finally, I found that the topic of future change was addressed by using hypothetical scenarios and questions. Overall, this thesis demonstrates that it is feasible to adapt speech and language therapy for people with PPA from English to Norwegian and that people with PPA have the resources to participate in conversations.

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